Pulmonary function

Invasive ventilation usage CR  PR  longitudinal 

Specifies whether the individual is currently using or has ever used invasive ventilation due to their neuromuscular condition over a period of two weeks or more. If the value is Currently, Previously, or Sometime, one or more instances of the record Invasive ventilation episode should be provided to specify details.

Invasive ventilation (IV) is surgery that creates an opening in the windpipe which allows breathing through a tracheostomy tube rather than through the nose and mouth.

Item type: single selection
Usage in other datasets: SMADMDLGMD
Value ID Description
Currently

This is currently the case

Previously

This has previously been the case, but is not currently

Never

This has never been the case, neither previously nor currently

Sometime

This has been the case at some time, but it is unknown whether it is currently the case

Not currently

This is currently not the case, but it is unknown whether it has previously been the case

Record

Invasive ventilation episode     CR alt  PR alt    episode   

Episode that describes current or previous usage of invasive ventilation due to the individual's neuromuscular condition. Only periods of two weeks or more are to be added.

This record and the item Current invasive ventilation duration are alternatives. That is, either the episode with start and stop/ongoing dates and the usage duration during that time, or the current usage duration (in the case of current usage) must be collected.

Invasive ventilation duration CR alt  PR alt 
Item type: single selection
Usage in other datasets: SMASMADMDDMDLGMDLGMD
Value ID Description
Full-time

Full-time (the individual uses ventilation of the respective type for 16 hours or more per 24 hours)

Part-time awake and sleeping

Part-time, awake and sleeping (the individual uses ventilation of the respective type while awake and while sleeping, or only while awake, with a total duration of less than 16 hours per 24 hours)

Part-time sleeping

Part-time, only while sleeping (the individual uses ventilation of the respective type only while sleeping)

Current invasive ventilation duration CR alt  PR alt 

This value must only be collected if Invasive ventilation usage is Currently. This item and the record Invasive ventilation episode are alternatives; see above for more information.

Item type: single selection
Usage in other datasets: SMASMADMDDMDLGMDLGMD
Value ID Description
Full-time

Full-time (the individual uses ventilation of the respective type for 16 hours or more per 24 hours)

Part-time awake and sleeping

Part-time, awake and sleeping (the individual uses ventilation of the respective type while awake and while sleeping, or only while awake, with a total duration of less than 16 hours per 24 hours)

Part-time sleeping

Part-time, only while sleeping (the individual uses ventilation of the respective type only while sleeping)

Non-invasive ventilation usage CR  PR  longitudinal 

Specifies whether the individual is currently using or has ever used non-invasive ventilation due to their neuromuscular condition over a period of two weeks or more. If the value is Currently, Previously, or Sometime, one or more instances of the record Non-invasive ventilation episode should be provided to specify details.

Non-invasive ventilation (NIV) uses airway support which is administered through a nose or face mask.

Item type: single selection
Usage in other datasets: SMADMDLGMD
Value ID Description
Currently

This is currently the case

Previously

This has previously been the case, but is not currently

Never

This has never been the case, neither previously nor currently

Sometime

This has been the case at some time, but it is unknown whether it is currently the case

Not currently

This is currently not the case, but it is unknown whether it has previously been the case

Record

Non-invasive ventilation episode     CR alt  PR alt    episode   

Episode that describes current or previous usage of non-invasive ventilation due to the individual's neuromuscular condition. Only periods of two weeks or more are to be added.

This record and the item Current non-invasive ventilation duration are alternatives. That is, either the episode with start and stop/ongoing dates and the usage duration during that time, or the current usage duration (in the case of current usage) must be collected.

Non-invasive ventilation duration CR alt  PR alt 
Item type: single selection
Usage in other datasets: SMASMADMDDMDLGMDLGMD
Value ID Description
Full-time

Full-time (the individual uses ventilation of the respective type for 16 hours or more per 24 hours)

Part-time awake and sleeping

Part-time, awake and sleeping (the individual uses ventilation of the respective type while awake and while sleeping, or only while awake, with a total duration of less than 16 hours per 24 hours)

Part-time sleeping

Part-time, only while sleeping (the individual uses ventilation of the respective type only while sleeping)

Current non-invasive ventilation duration CR alt  PR alt 

This value must only be collected if Non-invasive ventilation usage is Currently. This item and the record Non-invasive ventilation episode are alternatives; see above for more information.

Item type: single selection
Usage in other datasets: SMASMADMDDMDLGMDLGMD
Value ID Description
Full-time

Full-time (the individual uses ventilation of the respective type for 16 hours or more per 24 hours)

Part-time awake and sleeping

Part-time, awake and sleeping (the individual uses ventilation of the respective type while awake and while sleeping, or only while awake, with a total duration of less than 16 hours per 24 hours)

Part-time sleeping

Part-time, only while sleeping (the individual uses ventilation of the respective type only while sleeping)

Record

Pulmonary function test result CR             

At baseline, the result of the most recent test must be collected; at updates, the result of every test since the previous update must be collected.

Pulmonary function test date CR 

Date of the pulmonary function test in which the results specified in this record instance were obtained.

Item type: date
Usage in other datasets: SMADMDLGMD
Forced vital capacity volume CR 

Forced vital capacity as absolute volume in litres.

Forced vital capacity (FVC) is the total amount of air exhaled during the FEV (Forced expiratory volume) test.

Item type: decimal
Unit: litres
Usage in other datasets: SMADMDLGMD
Forced vital capacity percentage CR 

Forced vital capacity as percentage of predicted value.

Item type: decimal
Unit: percent
Usage in other datasets: SMADMDLGMD
Peak cough flow CR 

Peak cough flow (PCF) in litres per minute.

Item type: decimal
Unit: litres per minute
Usage in other datasets: SMADMDLGMD