Motor function

  • Sit without support (WHO): Sits up straight with the head erect for at least 10 seconds. Does not use arms or hands to balance body or support position.
  • Stand without assistance (WHO): Stands in upright position on both feet (not on the toes) with the back straight. The legs support 100% of the body weight. There is no contact with a person or object. Stands alone for at least 10 seconds.
  • Walk without assistance (WHO): Takes at least 5 steps independently in upright position with the back straight. One leg moves forward while the other supports most of the body weight. There is no contact with a person or object.
  • Useful function of hands (RULM): Can use hands to hold pencil or pick up a token or drive a powered chair, use phone key pad. Corresponds to a score of 1 of the RULM entry item.
  • Reach overhead in a sitting position (RULM): Can raise both arms simultaneously above head whilst in a sitting position. Corresponds to a score of 5 or 6 on the RULM entry item.
  • Raise hands to mouth in a sitting position (RULM): Can raise one or two hands to mouth whilst in a sitting position. Corresponds to a score of 2 on the RULM entry item.

Abilities marked with “WHO” are taken from the WHO Motor Milestones; those marked with “RULM” are contained in the Revised Upper Limb Module.

Record

Motor ability CR  PR      longitudinal     

The datestamp of this record must be the date to which the value of Motor ability status refers. This may generally be assumed to be the entry date for patient-reported registries, or the date of the clinical examination for clinician-reported registries.

Motor ability CR  PR 
Item type: single selection
Usage in other datasets: SMADMDLGMD
Value ID Description
Sit without support

Sit without support

Stand without assistance

Stand without assistance

Walk without assistance

Walk without assistance

Useful function of hands

Useful function of hands

Reach overhead in a sitting position

Reach overhead in a sitting position

Raise hands to mouth in a sitting position

Raise hands to mouth in a sitting position

Motor ability status CR  PR 

Specifies whether the individual currently has or previously had the ability specified in Motor ability.

If possible, registries should collect the current and previous status. However, registries may instead collect only the current status (i.e., whether the individual currently has the respective ability or not) and map this to the values Currently and Not currently.

Item type: single selection
Usage in other datasets: SMA
Value ID Description
Currently

This is currently the case

Previously

This has previously been the case, but is not currently

Never

This has never been the case, neither previously nor currently

Sometime

This has been the case at some time, but it is unknown whether it is currently the case

Not currently

This is currently not the case, but it is unknown whether it has previously been the case