The items in this group should be collected for individuals with known cardiac involvement or when cardiac involvement is possible based on their diagnosis. In disease-specific registries where no cardiac involvement is expected, these items may be omitted altogether.
Specifies whether the individual has been diagnosed with a cardiomyopathy.
If the value is No, registries should ask the data provider at each update whether this value is still current. If the value is Yes, the diagnosis date must be collected in the item Cardiomyopathy diagnosis date and the datestamp for this item is not required.
| Item type: | yes/no |
| Classification: | |
| Usage in other datasets: | LGMD |
Date when the individual's cardiomyopathy was first diagnosed.
| Item type: | date |
| Consistency rules: | If a value for this item is provied, |
| Usage in other datasets: | LGMD |
Specifies whether the individual has been diagnosed with an arrhythmia that requires treatment or monitoring.
If the value is No, registries should ask the data provider at each update whether this value is still current. If the value is Yes, the diagnosis date must be collected in the item Arrhythmia diagnosis date and the datestamp for this item is not required.
| Item type: | yes/no |
| Classification: | |
| Usage in other datasets: | LGMD |
Date when the individual's cardiomyopathy was first diagnosed.
| Item type: | date |
| Consistency rules: | If a value for this item is provied, |
| Usage in other datasets: | LGMD |
At baseline and registry updates, the results of the most recent imaging should be collected in this record.
If cardiac items are collected, the results of the latest electrocardiography should be collected at baseline. At registry updates, all results since the last update should be added.
| Item type: | single selection |
| Usage in other datasets: | LGMD |