The items in this group are solely for the purpose of generating a privacy-preserving record linkage (PPRL) code, which is a technology that TREAT-NMD aims to utilise in future. They should only be collected and stored locally, and will never be requested by the TREAT-NMD Global Registry for verbatim transfer.
Note that the specification of these items may be changed or refined when a particular system for privacy-preserving record linkage has been adopted by TREAT-NMD.
| Item type: | free text |
| Related items in previous version: | 2.02 |
| Usage in other datasets: | DMDLGMD |
In version 1, the first name at birth was to be captured in item 2.02 only when different from the current first name; from version 2.0 on, it must be captured in this item in any case. In version 2.0, this item was made mandatory for all registries.
| Item type: | free text |
| Related items in previous version: | 2.04 |
| Usage in other datasets: | DMDLGMD |
In version 1, the last name at birth was to be captured in item 2.04 only when different from the current last name; from version 2.0 on, it must be captured in this item in any case. In version 2.0, this item was made mandatory for all registries.
Full date of birth of the individual, including the day. The value may be taken from an official document such as a birth certificate, passport, identity card, or health insurance card, but may also be provided by the individual or their guardian. If the values from any of these sources differ, the value on the birth certificate, or alternatively a different government-issued document, must be used.
| Item type: | date |
| Related items in previous version: | 2.00 |
| Usage in other datasets: | DMDLGMD |
The sex that was assigned to the individual at birth. If a birth certificate is available, this value must match the sex given on the certificate. If the sex at birth is not known, this value must be empty. The value Unspecified must only be used if a birth certificate exists, but has no sex recorded.
| Item type: | single selection |
| Related items in previous version: | 2.06 |
| Usage in other datasets: | DMDLGMD |
| Value ID | Description |
|---|---|
| Male | Male |
| Female | Female |
| Intersex | Intersex |
| Unspecified | There is no sex specified on the pertinent document (e.g. birth certificate, passport or identity card) |
In version 1, the sex assigned at birth was to be captured in item 2.06 only when different from the current sex; from version 2.0 on, it must be captured in this item in any case. In version 2.0, the value Intersex was added and this item was made mandatory for all registries.
ISO 3166-1 alpha-2 two-letter code (e.g. GB for the United Kingdom) of the country of birth of the individual.
| Item type: | restricted text |
| Related items in previous version: | 2.13 |
| Usage in other datasets: | DMDLGMD |
In version 2.0, it was clarified that the ISO 3166-1 two-letter code is to be used and this item was made mandatory for all registries.