Every registry must collect the motor function status with respect to each of the following abilities. These items are intended to be feasible for all registries (both clinician and patient-reported) to collect.
Abilities marked with “WHO” are taken from the WHO Motor Milestones; those marked with “RULM” are contained in the Revised Upper Limb Module.
For each ability, the present and past status of the individual must be collected. Since the type of information to be collected is the same for each ability, this group contains only two records. For every individual, at least one instance of each record must be provided for each of the abilities.
The datestamp of this record must be the date to which the value of Motor ability status
refers. This may generally be assumed to be the entry date for patient-reported registries, or the date of the clinical examination for clinician-reported registries.
Related items in previous version: | 7.00, 7.01, 7.02, 7.03, 7.04, 7.05, 7.06, 7.07, 7.08, 7.09, 7.10, 7.11, 7.12 |
Item type: | single selection |
Usage in other datasets: | DMDLGMD |
Currently
, Previously
and
Never
with suitable user-friendly wording. See the
introduction
for more information and alternative ways to collect this item.
Specifies whether the individual currently has or previously had the ability specified in Motor ability
.
If the value is Currently
, Previously
, or Sometime
, one or more instances of the record Motor ability episode
should be provided to specify details.
Item type: | single selection |
In version 2.0, this item replaced the items specified in version 1 as “For each motor function item, specify: Never able; Gained [...]; Gained and lost [...]”. As the new item is in a longitudinal record, it is thus possible to provide multiple ”snapshot” assessments, in particular when they are made by a clinician who can only judge the current status at each visit.
This is an episode record: For each record instance, the following dates must be captured:
Start date
: The month and year when the condition
described by the record started to hold, if known
Stop date
: The month and year when the condition
ceased to hold, if applicable and known
Ongoing date
: The month and year on which the
condition was known to hold, if applicable
See the introduction for more information.
It is assumed that the episodes will always be provided by the individual or caregiver, either directly (in patient-reported or dual-reported registries) or reported to a clinician (in clinician-reported registries). To collect observations made by a clinician, use the record Motor ability
with a value of Yes
for the item Motor ability observed in clinic
.
The start and stop dates of this episode may also be collected by asking for the age (for instance with separate fields for years and months). The ages must be converted into (partial) dates when the values of Start date
and Stop date
are required.
Related items in previous version: | 7.00, 7.01, 7.02, 7.03, 7.04, 7.05, 7.06, 7.07, 7.08, 7.09, 7.10, 7.11, 7.12 |
In version 2.0, this record replaced the items specified in version 1 as “age YY-MM” in case the ability was gained and “age gained YY-MM and age lost YY-MM” in case the ability was gained and lost. By providing more that once record instance, the episode structure also allows providing details in case an ability was regained.
Motor ability this episode refers to.
Item type: | single selection |