This is a reference period record: For each record instance, the following dates (consisting of month and year) must be captured:
Begin date specifies the begin of the period to which
the question refers
End date specifies the end of the period to which the
question refers
At baseline, the period should range over the last 12 months before the date of entry; at follow-ups, it should range from the last update to the date of entry. See the introduction for more information.
Specifies whether the individual has taken any prescribed allopathic drugs (to manage symptoms - not disease-modifying) or supplements during this reference period. If the value is Yes, details for each drug may be specified in instances of the record Allopathic drug episode.
| Item type: | yes/no |
| Related items in previous version: | 11.11 |
| Usage in other datasets: | DMD |
Prescribed allopathic drugs or supplements the individual has taken during some time in the period from Begin date to End date.
Please note that the inclusion of a drug or supplement in this list does not indicate TREAT-NMD endorsement.
| Item type: | multiple selection |
| Related items in previous version: | 11.12 |
| Usage in other datasets: | DMD |
Comma-separated list of the International Nonproprietary Names (INNs) of other drugs.
| Item type: | free text |
| Related items in previous version: | 11.12 |
| Usage in other datasets: | DMD |
This is an episode record: For each record instance, the following dates must be captured:
Start date: The month and year when the condition
described by the record started to hold, if known
Stop date: The month and year when the condition
ceased to hold, if applicable and known
Ongoing date: The month and year on which the
condition was known to hold, if applicable
See the introduction for more information.
Details of the allopathic drugs the individual has taken. Although this record is not mandatory for any periods, it is intended to capture details on the drugs taken during the reference periods specified in the record Allopathic drugs. For any medications taken only once (or once a year, for example annual vaccinations), Start date and Stop date should both be equal to the administration date.
| Related items in previous version: | 11.13, 11.14 |
In version 2.1, it was clarified that for one-time medications, including annual vaccinations, Start date and Stop date should both be equal to the administration date.
Prescribed allopathic drug or supplement the individual has taken.
Please note that the inclusion of a drug or supplement in this list does not indicate TREAT-NMD endorsement.
| Item type: | single selection |
| Related items in previous version: | 11.12 |
| Usage in other datasets: | DMD |
International Nonproprietary Name (INN) of the other drug taken.
| Item type: | free text |
| Related items in previous version: | 11.12 |
| Usage in other datasets: | DMD |
This is a reference period record: For each record instance, the following dates (consisting of month and year) must be captured:
Begin date specifies the begin of the period to which
the question refers
End date specifies the end of the period to which the
question refers
At baseline, the period should range over the last 12 months before the date of entry; at follow-ups, it should range from the last update to the date of entry. See the introduction for more information.
In version 2.0, these items were renamed from “Therapeutic interventions” to “Rehabilitative interventions”.
Specifies whether the individual has received any rehabilitative interventions in this period.
For the purposes of this dataset, “rehabilitative interventions” refers to the management of the individual’s condition and quality of life through therapies from allied health professionals such as physiotherapists and speech therapists.
| Item type: | yes/no |
| Consistency rules: | If |
| Related items in previous version: | 11.20 |
| Usage in other datasets: | DMD |
Rehabilitative interventions the individual has received at some time during the period from Begin date to End date.
In addition to the values listed for this item, registries may add further options in their data collection forms if relevant locally, and/or provide a free text field. However, additional options not specified in this dataset must not be provided in a data submission for a TREAT-NMD enquiry. Future revisions of this dataset may include additional values, and these can be suggested (along with justification) by using the “Report an issue with this item” function.
| Item type: | multiple selection |
| Related items in previous version: | 11.20 |
| Usage in other datasets: | DMD |
The value Other and the related free-text field were removed from the dataset in version 2.0. However, registries may include them in their data collection forms as noted above.