Motor function

  • Sit without support (WHO): Sits up straight with the head erect for at least 10 seconds. Does not use arms or hands to balance body or support position.
  • Transfer: Can transfer from bed to a chair and vice versa without help from another person. Use of an assistive device such as a transfer board is permitted.
  • Stand without assistance (WHO): Stands in upright position on both feet (not on the toes) with the back straight. The legs support 100% of the body weight. There is no contact with a person or object. Stands alone for at least 10 seconds.
  • Get up from chair: Can get up from a chair without help from another person. Use of armrests for support is permitted.
  • Rise from floor: Can rise from the floor without help from another person and without contact to any object such as furniture. The starting position (e.g. sitting or lying) is irrelevant.
  • Walk without assistance (WHO): Takes at least 5 steps independently in upright position with the back straight. One leg moves forward while the other supports most of the body weight. There is no contact with a person or object.
  • Climb stairs: Climbs at least 4 stairs independently. Contact with a railing is permitted but there is no additional help from a person or other object.
  • Run: Can move at a speed faster than a walk, never having both feet on the ground at the same time.
  • Useful function of hands (RULM/PUL): Can use hands to hold pencil or pick up a token or drive a powered chair, use phone key pad. Corresponds to a score of 1 of the RULM/PUL entry item and to a grade of 5 on the Brooke scale.
  • Reach overhead in a sitting position (RULM/PUL): Can raise both arms simultaneously above head whilst in a sitting position. Corresponds to a score of 5 or 6 on the RULM/PUL entry item and to a grade of 1 or 2 on the Brooke scale.
  • Raise hands to mouth in a sitting position (RULM/PUL): Can raise one or two hands to mouth whilst in a sitting position. Corresponds to a score of 2 on the RULM entry item and to a grade of 4 on the Brooke scale.

Abilities marked with “WHO” are taken from the WHO Motor Milestones; those marked with “RULM/PUL” are contained in the entry items of the Revised Upper Limb Module for SMA and the Performance of the Upper Limb Module for DMD 2.0 as well as, with different grades, in the Brooke scale.

Record

Motor ability CR  PR  longitudinal     

The datestamp of this record must be the date to which the value of Motor ability status refers. This may generally be assumed to be the entry date for patient-reported registries, or the date of the clinical examination for clinician-reported registries.

Motor ability CR  PR 
Item type: single selection
Usage in other datasets: SMADMD
Value ID Description
Sit without support

Sit without support

Transfer

Transfer from bed to chair

Stand without assistance

Stand without assistance

Get up from chair

Get up from chair

Rise from floor

Rise from floor without assistance

Walk without assistance

Walk without assistance

Climb stairs

Climb stairs

Run

Run

Useful function of hands

Useful function of hands

Reach overhead in a sitting position

Reach overhead in a sitting position

Raise hands to mouth in a sitting position

Raise hands to mouth in a sitting position

Motor ability status CR  PR 

Specifies whether the individual currently has the ability specified in Motor ability.

Item type: yes/no
Loss of ambulation date CR  PR 

Date when the individual lost the ability to walk without assistance, if applicable.

Item type: date