Currently, Previously and
Never with suitable user-friendly wording. See the
introduction
for more information and alternative ways to collect this item.
Specifies whether the individual is currently taking or has previously taken corticosteroids for their neuromuscular condition.
| Item type: | single selection |
| Usage in other datasets: | DMD |
This is an episode record: For each record instance, the following dates must be captured:
Start date: The month and year when the condition
described by the record started to hold, if known
Stop date: The month and year when the condition
ceased to hold, if applicable and known
Ongoing date: The month and year on which the
condition was known to hold, if applicable
See the introduction for more information.
At baseline, details for the most recent or ongoing corticosteroid usage must be given in an instance of this record. At registry updates, a previously ongoing episode should be updated and any further episodes added as additional instances.
The stop date should be the date of the last administration during this episode.
Integer item specifying the number of days in a row the individual has been taking the corticosteroid. In combination with the subsequent item Corticosteroid administration days off, it specifies the administration schedule. The following table shows examples for various administration frequencies, where the column "Days on" contains the value of this item and "Days off" contains the value of the item Corticosteroid administration days off:
| Administration frequency | Days on | Days off |
|---|---|---|
| Daily | 1 | 0 |
| Every other day | 1 | 1 |
| Weekend dosing | 2 | 5 |
| 10 days on/10 days off | 10 | 10 |
| 20 days on/10 days off | 20 | 10 |
| etc. |
For daily administration, value of Corticosteroid administration days on must be 1. Registries should offer a predefined list of options for the most common administration frequencies (for example those shown in the table above) which are automatically mapped to the according values of the items Corticosteroid administration days on and Corticosteroid administration days off, while displaying number input fields only to cover further cases.
| Item type: | integer |
| Usage in other datasets: | DMD |
Currently, Previously and
Never with suitable user-friendly wording. See the
introduction
for more information and alternative ways to collect this item.
Specifies whether the individual is currently receiving or has previously received cardiac treatment.
| Item type: | single selection |
| Usage in other datasets: | DMD |
This is an episode record: For each record instance, the following dates must be captured:
Start date: The month and year when the condition
described by the record started to hold, if known
Stop date: The month and year when the condition
ceased to hold, if applicable and known
Ongoing date: The month and year on which the
condition was known to hold, if applicable
See the introduction for more information.
Episode that describes a previous or currently ongoing cardiac treatment of the type specified in Cardiac treatment or the drug specified in Other cardiac drug. At baseline, one record instance must be provided for each currently ongoing cardiac drug as well as for all previous or current uses of a pacemaker or ICD. At registry updates, all previously ongoing episodes must be updated and any further treatments since the last update added as additional instances.
Cardiac treatment this episode refers to.
| Item type: | single selection |
| Consistency rules: | A value must not be specified for both this item and |
| Usage in other datasets: | DMD |
International Nonproprietary Name (INN) of a cardiac drug that this episode refers to but which is not listed as a possible value of the item Cardiac treatment.
| Item type: | free text |
| Usage in other datasets: | DMD |
| Item type: | single selection |