Living status

In patient-reported registries, we do not suggest that the individual/caregiver should answer this question. Ideally this item will be managed/entered by the Registry Curator, following review of the registration or communication from individual's family.

Alive CR  PR  datestamped 

Yes means that the individual was known to be alive at the datestamp of this value. No means that the individual is known to be deceased; in this case, the datestamp of this value is irrelevant and may be omitted. If known, the date of death is to be provided in the item Date of death.

It should not be necessary to store an explicit datestamp for this item. Instead, a registry may use the date of the last update or contact with the individual as the datestamp.

Item type: yes/no
Usage in other datasets: SMADMD
Date of death CR  PR 

Date of the death of the individual. The date of death may be provided as a year only, if the month is not known.

Item type: date
Consistency rules:

May only be provided if the value of Alive is No.

Usage in other datasets: SMADMD
Cause of death code CR 

Cause of death as code of the classification specified in Cause of death classification.

Item type: restricted text
Consistency rules:

May only be provided if the value of Alive is No.

Usage in other datasets: SMADMD
Cause of death classification CR 

Classification used in the item Cause of death code.

Item type: single selection
Consistency rules:

Must be provided if Cause of death code is provided.

Usage in other datasets: SMADMD
Value ID Description
ICD-10

ICD-10

ICD-11

ICD-11