This is a reference period record: For each record instance, the following dates (consisting of month and year) must be captured:
Begin date specifies the begin of the period to which
the question refers
End date specifies the end of the period to which the
question refers
At baseline, the period should range over the last 12 months before the date of entry; at follow-ups, it should range from the last update to the date of entry. See the introduction for more information.
Specifies whether the individual has been diagnosed with other comorbidities during the period from Begin date to End date. This includes any comorbidities diagnosed earlier than Begin date which still held during this period. In this context comorbidities are defined as any additional medical conditions occurring alongside the neuromuscular condition.
| Item type: | yes/no |
| Usage in other datasets: | sNMD |
This is an episode record: For each record instance, the following dates must be captured:
Start date: The month and year when the condition
described by the record started to hold, if known
Stop date: The month and year when the condition
ceased to hold, if applicable and known
Ongoing date: The month and year on which the
condition was known to hold, if applicable
See the introduction for more information.
This record contains details for comorbidities that held during the reference periods specified in Comorbidities period.
The start date of the episode must be the date of the diagnosis of the comorbidity specified in Comorbidity code, if known. The stop date of the episode must be the end of the symptoms of the comorbidity.
Note that the start and stop dates of comorbidity episodes may extend over multiple reference periods. For example, a comorbidity that held during the 12 months before the baseline entry may have been diagnosed many years earlier. Furthermore, a comorbidity that was entered at baseline may still hold at follow up; in this case, the Ongoing date of the episode already entered should be updated to the date of the follow up.
Comorbidity as code of the classification specified in Comorbidity classification. Registries, in particular patient-reported registries, may provide common comorbidities as a list in their data collection forms or have users enter the diagnosis in a free-text field which is then coded by a curator.
| Item type: | restricted text |
| Usage in other datasets: | sNMD |
Classification used in the item Comorbidity code. The list of possible values may be amended in future versions of the dataset to enable the use of codes present only in local ICD-10 modifications.
| Item type: | single selection |
| Usage in other datasets: | sNMD |
| Value ID | Description |
|---|---|
| ICD-10 | ICD-10 |
| ICD-11 | ICD-11 |
| MedDRA | MedDRA |