Patient-reported outcome measures

Record

Patient-reported outcome measure     longitudinal     

Patient-reported outcome measure
Item type: single selection
Related items in previous version: 18.02, 18.06
Usage in other datasets: SMALGMD
Value ID Description
DISABKIDS

DISABKIDS (Measurement of Quality of Life and Level of Distress)

INQoL

INQoL (Individualised Neuromuscular Quality of Life Questionnaires) 2.0, provide score between 0 and 274

KIDSCREEN-52

KIDSCREEN-52

PedsQL 4.0 Generic Core Scales

PedsQL 4.0 Generic Core Scales

PedsQL 3.0 Neurosmuscular Module

PedsQL 3.0 Neurosmuscular Module, provide score between 0 and 100

PedsQL Multidimensional Fatigue Scale

PedsQL Multidimensional Fatigue Scale, provide score between 0 and 72

PedsQL 3.0 Duchenne Muscular Dystrophy Module

PedsQL 3.0 Duchenne Muscular Dystrophy Module

PODCI

PODCI (Pediatric Outcomes Data Collection Instrument), provide score between 0 and 100

Patient-reported outcome measure score

The Patient-reported outcome measure value description specifies which type of score must be provided.

Item type: decimal
Related items in previous version: 18.04, 18.07
Usage in other datasets: SMALGMD