Motor function

Record

Motor ability     longitudinal     

  • Sit without support (WHO): Sits up straight with the head erect for at least 10 seconds. Does not use arms or hands to balance body or support position.
  • Transfer: Can transfer from bed to a chair and vice versa without help from another person. Use of an assistive device such as a transfer board is permitted.
  • Stand without assistance (WHO): Stands in upright position on both feet (not on the toes) with the back straight. The legs support 100% of the body weight. There is no contact with a person or object. Stands alone for at least 10 seconds.
  • Get up from chair: Can get up from a chair without help from another person. Use of armrests for support is permitted.
  • Rise from floor: Can rise from the floor without help from another person and without contact to any object such as furniture. The starting position (e.g. sitting or lying) is irrelevant.
  • Walk without assistance (WHO): Takes at least 5 steps independently in upright position with the back straight. One leg moves forward while the other supports most of the body weight. There is no contact with a person or object.
  • Climb stairs: Climbs at least 4 stairs independently. Contact with a railing is permitted but there is no additional help from a person or other object.
  • Run: Can move at a speed faster than a walk, never having both feet on the ground at the same time.
  • Useful function of hands (RULM/PUL): Can use hands to hold pencil or pick up a token or drive a powered chair, use phone key pad. Corresponds to a score of 1 of the RULM/PUL entry item and to a grade of 5 on the Brooke scale.
  • Reach overhead in a sitting position (RULM/PUL): Can raise both arms simultaneously above head whilst in a sitting position. Corresponds to a score of 5 or 6 on the RULM/PUL entry item and to a grade of 1 or 2 on the Brooke scale.
  • Raise hands to mouth in a sitting position (RULM/PUL): Can raise one or two hands to mouth whilst in a sitting position. Corresponds to a score of 2 on the RULM entry item and to a grade of 4 on the Brooke scale.

Abilities marked with “WHO” are taken from the WHO Motor Milestones; those marked with “RULM/PUL” are contained in the entry items of the Revised Upper Limb Module for SMA and the Performance of the Upper Limb Module for DMD 2.0 as well as, with different grades, in the Brooke scale.

Motor ability
Item type: single selection
Usage in other datasets: SMALGMD
Value ID Description
Sit without support

Sit without support

Transfer

Transfer from bed to chair

Stand without assistance

Stand without assistance

Get up from chair

Get up from chair

Rise from floor

Rise from floor without assistance

Walk without assistance

Walk without assistance

Climb stairs

Climb stairs

Run

Run

Useful function of hands

Useful function of hands

Reach overhead in a sitting position

Reach overhead in a sitting position

Raise hands to mouth in a sitting position

Raise hands to mouth in a sitting position

Motor ability status

Specifies whether the individual currently has the ability specified in Motor ability.

Item type: yes/no
Related items in previous version: 10.01, 10.05, 10.08
Record

Motor measure CR    longitudinal     

The collection of the following motor measures is mandatory for clinician-reported registries:

  • 10MWT (10-Metre Walk Test)
  • Brooke Scale of Upper Extremity Function
  • RFF (Time to rise from the floor)

The collection of all other motor measures is non-mandatory.

Motor measure CR 
Item type: single selection
Usage in other datasets: SMALGMD
Value ID Description
10MWT

10MWT (10-Metre Walk Test), provide time in seconds

100MTT

100MTT (100-Meter Timed Test), provide time in seconds

4SC

4SC (4-stair climb), provide time in seconds

Brooke

Brooke Scale of Upper Extremity Function, provide grade between 1 and 6

EK2

EK2 (Egen Klassification 2), provide score between 0 and 51

MFM-20

MFM-20 total score (Motor Function Measurement), provide total score as percentage between 0 and 100

MFM-20 D1

MFM-20 D1 (Motor Function Measurement), provide domain score as percentage between 0 and 100

MFM-20 D2

MFM-20 D2 (Motor Function Measurement), provide domain score as percentage between 0 and 100

MFM-20 D3

MFM-20 D3 (Motor Function Measurement), provide domain score as percentage between 0 and 100

MFM-32

MFM-32 total score (Motor Function Measurement), provide total score as percentage between 0 and 100

MFM-32 D1

MFM-32 D1 (Motor Function Measurement), provide domain score as percentage between 0 and 100

MFM-32 D2

MFM-32 D2 (Motor Function Measurement), provide domain score as percentage between 0 and 100

MFM-32 D3

MFM-32 D3 (Motor Function Measurement), provide domain score as percentage between 0 and 100

NSAA

NSAA (North Star Ambulatory Assessment), provide score between 0 and 34

PUL2

PUL2 (Performance of Upper Limb module for DMD 2.0), provide score between 0 and 42

RFF

RFF (Time to rise from the floor), provide time in seconds

Motor measure score CR 

The Motor measure value description specifies the unit in which the outcome must be provided.

Item type: decimal
Related items in previous version: 10.02, 10.04, 10.07, 10.10, 10.12, 10.14, 10.16, 10.18, 10.20
Usage in other datasets: SMALGMD