In patient-reported registries, we do not suggest that the individual/caregiver should answer this question. Ideally this item will be managed/entered by the Registry Curator, following review of the registration or communication from individual's family.
Yes means that the individual was known to be alive at the datestamp of this value.
No means that the individual is known to be deceased; in this case, the datestamp of this value is irrelevant and may be omitted. If known, the date of death is to be provided in the item
Date of death.
It should not be necessary to store an explicit datestamp for this item. Instead, a registry may use the date of the last update or contact with the individual as the datestamp.
|Related items in previous version:
|Usage in other datasets: